Why I Joined a Clinical Trial

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At the very first mention of my cancer diagnosis, all I could think of was “How do I beat this…what’s my best course of action?” A clinical trial was the answer. I had never heard of Multiple Myeloma, so I wasn’t real confident that there would be a trial for me to join. I was so relieved when there was. How could one not benefit from constant monitoring and undergoing extra testing? I have done extremely well and have had no setbacks. I don’t know if I would be in the same spot if it weren’t for the trial. I am so thankful for the doctors and researchers that work tirelessly toward a cure.

~LeAnn Holmes

Type(s) of Trial: Treatment

Trial Link(s): Bortezomib or Carfilzomib With Lenalidomide and Dexamethasone in Treating Patients With Newly Diagnosed Multiple Myeloma

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I participated in a clinical trial because I want to help pave the way in research for others to have the opportunity to live comfortably, proudly and happily.  Our cancer does not define us -we CAN control our lives.  This research helped me and I know that it will help many others out there gain strength and relief.

~Latory Jemison

Type(s) of Trial: Supportive Care

Trial Link(s): Testing the Effects of Transcutaneous Electrical Nerve Stimulation (TENS) on Chemotherapy-Induced Peripheral Neuropathy (CIPN)

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After seeing what my own family went through with cancer, I’m blessed to have the opportunity to make other people’s lives better. I’m a lifelong blood donor too, so I’m always looking for ways to give of myself to help others.

~Donna Kihneman

Type(s) of Trial: Prevention

Trial Link(s): fimoxifene in Reducing the Risk of Breast Cancer in Women With Mammographically Dense Breast

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We chose to participate in a clinical trial to give our daughter the best chance of survival and to help find better treatment options for future kids diagnosed with neuroblastoma. ~ Makenna Lai's Mother

~Makenna Lai

Type(s) of Trial: Treatment

Trial Link(s): Irinotecan Hydrochloride, Temozolomide, and Dinutuximab With or Without Eflornithine in Treating Patients With Relapsed or Refractory Neuroblastoma

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I enrolled in the trial, in part, because I wanted to be able to tell my future patients that, when given the opportunity to participate in a clinical trial, I did so. If I was fortunate enough to survive my malignancy, I felt that my personal involvement in a clinical trial strengthened my endorsement of clinical trial participation for my future patients. Patients should know that the focus of cancer-related investigation extends beyond traditional cancer-related endpoints and into the control of cancer- and treatment-related symptoms.

~Alan Lyss, M.D.

Type(s) of Trial: Supportive Care

Trial Link(s): American Ginseng in Treating Patients with Fatigue Caused by Cancer

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I participated to hopefully help others with the research and to prolong my life.

~Kimberly McGinnis

Type(s) of Trial: Treatment

Trial Link(s): Phase III Trial of Bisphosphanates as Adjuvant Therapy for Primary Breast Cancer

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I was the first patient who Dr. Abraham enrolled on the NSABP B-31 clinical trial (chemo vs chemo + Trastuzumab in HER-2 positive breast cancer). I am grateful to him for presenting me with the opportunity to join the study 20 years ago in March 2001 and that I had the courage to participate, as I continue to do well to this day. This clinical trial ended up changing the landscape of treatment for future patients with breast cancer.

~Cyndi Mealey

Type(s) of Trial: Treatment

Trial Link(s): Doxorubicin and Cyclophosphamide Plus Paclitaxel With or Without Trastuzumab in Treating Women With Node-Positive Breast Cancer That Overexpresses HER2

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I give back so no one else has to suffer.

~Ian O’Donnell

Type(s) of Trial: Prevention

Trial Link(s): Recombinant Human Papillomavirus Nonavalent Vaccine in Preventing Human Papilloma Virus in Younger Healthy Participants

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I volunteer because my grandmother died of cancer… I want to help.

~Ethan O’Donnell

Type(s) of Trial: Prevention

Trial Link(s): Recombinant Human Papillomavirus Nonavalent Vaccine in Preventing Human Papilloma Virus in Younger Healthy Participants

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There are many ways we can create a legacy for our family. There are even fewer opportunities to create a legacy for humanity. Participating in clinical trials gives us a chance to do both.

~Stephania Pemberton

Type(s) of Trial: Cancer Care Delivery

Trial Link(s): Increasing Patients' Engagement in Breast Cancer Surgery Decision-Making

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I was lucky enough to participate in a clinical trial, and I would definitely do it again. It’s the reason I’m standing here today.

~Howard Reich

Type(s) of Trial: Treatment

Trial Link(s): Neoadjuvant Chemotherapy Followed by Radiation Therapy and Gemcitabine/Sorafenib/Vorinostat in Pancreatic Cancer

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When I was diagnosed at age 45 with breast cancer, I chose to participate in a trial (178 miles away) because I wanted to be part of something bigger – something beyond myself.  I am grateful for the volunteers that came before me and I am honored to have played a part in moving research forward.

~Nelle Rhicard

Type(s) of Trial: Treatment

Trial Link(s): Biological and Clinical Effects of Palbociclib With Ovarian Suppression and Letrozole in the Neoadjuvant Treatment of Breast Cancer